This page is dedicated to our fellow Minicore Myopathy Warriors, taken from their loved ones much too soon. May their individual journeys be shared amongst us,  so we can take that of which they wanted us to learn from. May their experiences help other families from trialing things that may not help, so they can focus their energy on something that may. May their precious memory live on forever in each of us that knew them or knew of them. Each so sadly missed, our friends connected by this rare condition will be, their battle and most importantly their SPIRIT will never be forgotten.


Rest In Peace Dear Friends

Forever In Our Hearts